Sunday, April 14, 2013

6 Month Anniversary

February 27, 2013

Today was our 6 month anniversary, so I decided to put B'Elanna in her Group Picture outfit and see how it fit/how much she had grown.  As you can see... not much....she had only grown about 1.2 inches and gained about 3 lbs.









My Little Empress!!





Seattle Children's Hospital - Colostomy

February 7 - February 13, 2013

B'Elanna was admitted to Seattle Children's Hospital for her Diverting Colostomy.  This is to give her rectum a chance to shrink back down.  While in hospital, I found out that B'Elanna's surgeries are going to be done in a 3-step series... not the 2-steps I had thought.  

#1) Is the Colostomy to allow her rectum to shrink

#2) She will have her corrective anoplasty and her rectum will be tapered if it hasn't shrunk enough.  Afterwards, she is given a 2 week recovery and then she starts a 8-9 months of Anal dilations.
#3) She will have her Colostomy takedown and start her life-long Bowel Management routine.

Here is a video synopsis I put together of hospital visit.   As you will see... we had a few ups and downs...

Things seemed fine when we first got home.  B'Elanna's physical recovery has gone well... she has continued to break out in hives, even when off ALL medicines, so I think they are due to stress.   Also, she developed a yeast infection under the wafer part of the colostomy that has spread ALL OVER her body.  So I am covering her from shoulder to toes in Nystanin and it is getting a bit better.   Emotionally... it is a bit of another story.  Nothing really bad, just she is MUCH more clingy.   She follows me from room to room to room, wants to be picked up and carried ALL the time... if I am sitting in the recliner and get up to go to the kitchen/bathroom/bedroom/anywhere... she IMMEDIATELY goes into a panic state and starts crying and shaking and grabbing onto me.

Early February....

So it has been awhile since I posted so I am going to back track a bit.

In February... B'Elanna started to interact with Posideon a lot more.   Here are few pictures of her reading to him.






For Christmas, B'Elanna received a playskool schoolbus from her Grammy and in January she received a box of goodies from our friends the McShane's... full of a bunch of Little People characters and Zootalker's animals.  Here are a few pictures of B'Elanna with her Little People.   I think her expressions are adorable... but also like how she lines them up face to face in a row.